Andersons pediatric cardiology 279
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ofcongenitalheartdisease:anInternetsurveyof
841parents.PediatrCardiol.2014;35(2):239–
252.
AfirstofitskindInternetsurveyprovidingunique
insightintoparents’perspectiveswhenreceiving
thediagnosisoftheirchild'scongenitalheart
condition.Thestudyhelpshighlightpotential
misunderstandingsofcommonterminology,
parents’viewsofphysiciandemeanor,andwhy
manyparentsseeksecondopinionsandchange
cardiologists..
JordanB,Franich-RayC,AlbertN,etal.Early
mother-infantrelationshipsaftercardiacsurgery
ininfancy.ArchDisChild.2014;99(7):641–645.
Astudyoftheimpactofcardiacsurgeryininfancy
onmother-infantbonding,whichfoundthat
bondingdifficultywasassociatedwitha
prenataldiagnosis..
KonAA,AckersonL,LoB.Howpediatricians
counselparentswhenno“best-choice”
managementexists.ArchPediatrAdolescMed.
2004;158:436–441.
Animportantstudyrevealingphysicianbias
impedingparent'sinformedconsentwhen
consideringtreatmentoptionsfortheirchild's
congenitalheartdisease.Physicianswerefound
torecommendtheirownhospitalfortreatment,
evenifthephysiciansbelievedhighersurvival
rateswereachievableatotherhospitals..
McKechnieAC,RogstadJ,MartinKM,etal.An
explorationofco-parentinginthecontextof
caringforachildprenatallydiagnosedandborn
withacomplexhealthcondition.JAdvNurs.
2017;74(2):350–363.
Anexplorationofparents’experiencesofthe
impactofaprenataldiagnosisofseverefetal
anomalyoncoparenting(bothbeforeandafter
delivery)..
RychikJ,DonaghueDD,LevyS,etal.Maternal
psychologicalstressafterprenataldiagnosisof
congenitalheartdisease.JPediatr.
2013;162(2):302–307.
Awell-conductedstudyindicatingthatahigh
proportionofpregnantwomenexperience
clinicallyimportantdepression,anxiety,and
traumaticstressfollowingaprenataldiagnosis
ofCHD..
SocietyofThoracicSurgeons.STSPublic
ReportingOnline:CongenitalHeartSurgery
PublicReporting.[Availableat]
2017.
Thefirstpublicreportingsiteforpediatric
congenitalheartsurgeriesintheUnitedStates,
currentlyincludingdatafromapproximately
two-thirdsofthesurgicalcentersthroughoutthe
UnitedStates..
VinocurJM,MenkJS,ConnettJ,etal.Surgical
volumeandcentereffectsonearlymortality
afterpediatriccardiacsurgery:25-yearNorth
Americanexperiencefromamulti-institutional
registry.PediatrCardiol.2013;34(5):1226–
1236.
A25-yearretrospectivestudyshowingthatsurgical
volumewasassociatedinverselywithoddsof
deathofcongenitalheartpatients..
WilliamsIA,ShawR,KleinmanCS,etal.Parental
understandingofneonatalcongenitalheart
disease.PediatrCardiol.2008;29(6):1059–
1065.
Astudydemonstratingthatparentsreceivinga
prenataldiagnosisofCHDhaveabetter
understandingoftheirchild'sconditionjust
priortoNICUdischargebutalsohavea
significantlyhigherlevelofanxietyabouttaking
theirbabyhome..
