Andersons pediatric cardiology 278
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Summary
CounselingforaprenataldiagnosisofCHDisextremelychallengingand
requiresknowledge,skills,experience,andanadequatelyresourcedand
cohesiveteam.AsthediagnosisoffetalCHDresultsinhighlevelsofparental
stress,itisvitalthatparentsreceivetimely,empatheticandaccurateinformation
alongwithemotionalandpracticalsupportfromthemultidisciplinaryteamearly
inthediagnosis,throughinitialdecisionmaking,fortheremainderofthe
pregnancyandwellintotheperinatalandneonatalperiod.
AnnotatedReferences
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prefermoreinformationthancardiologists
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Animportantstudyillustratingthatparentsof
childrenwithCHDprefertoreceivemore
counselingandeducationalinformationinthe
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BensemlaliM,StirnemannJ,LeBidoisJ,etal.
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Animportantstudyshowingthevariancebetween
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diagnosismadepostnatallyorbyfetopsies..
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aSwedishcontext.BMCPregnancyChildbirth.
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Arecentstudythatoutlinesparents’experiencesof
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BrosigCL,BearL,AllenS,etal.Preschool
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AstudyshowingthatmostchildrenwithCHD
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severedelays.Forthosewithoutgenetic
conditions,neurodevelopmentaldelaysdidnot
differbetweenthosewithsingleventricleand
biventricularphysiologies..
CostelloJM,MussattoK,CassedyA,etal.
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Thisstudyfoundthatphysiciansandnurseswho
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Hilton-KammD,SklanskyM,ChangRK.Hownot
totellparentsabouttheirchild'snewdiagnosis
